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The idea for the uterinefibroids website came from the uterinefibroids egroup--an online chat group that was borne out of the embo egroup (a support group for women who have undergone or are considering undergoing UAE). Not everyone who undergoes uterine artery embolization has immediate, positive results. And, not everyone is comfortable with going ahead with a UAE without further research. Although the embo group serves a valuable purpose as a support group, it does not, necessarily, meet the needs of those who have not had 100% positive results nor does it meet the needs of those desiring additional research to feel comfortable with their decision. In addition, the topic of sex is relatively taboo on the embo egroup. Sooooo, because of those 3 issues, the uterinefibroids group came online in December 1998.
In 2000, the National Uterine Fibroids Foundation (NUFF) was borne out of a collaboration of both physicians (offline) and women (online) and sponsorship for the uterinefibroids egroup was assumed by NUFF.
The Uterine Fibroids discussion group is for those interested in researching and discussing all methods of treatment for uterine fibroids. It encourages both positive and negative feedback on all methods of treatment ranging from hysterectomy, myomectomy, uterine artery embolization (UAE), endometrial ablation, RU-486, female reconstructive surgery (FRS), hormone replacement therapy (HRT) and any other treatment option that a woman may be considering or have already undergone in an effort to treat her uterine fibroids.
To subscribe, complete the subscription form below or go to the home page at groups.yahoo.com/group/uterinefibroids.
After subscribing, sign onto the website and read the archives from the web. To make the most sense of the postings you'll find there, start at the beginning (December 1998) and move forward.
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This page last updated Wednesday, April 10, 2002